Uniting Hearts: February 29th Rare Disease Day and the Kennedy Ladd Foundation’s Fight Against MPS I


On this rare leap year day, as the world comes together to raise awareness about rare diseases, the Kennedy Ladd Foundation takes center stage in the fight against MPS1. February 29th, Rare Disease Day, serves as a poignant reminder of the unique challenges faced by individuals and families affected by this rare genetic disorder. Join us as we shine a spotlight on MPS1 and the unwavering commitment of the Kennedy Ladd Foundation to make a difference in the lives of those touched by this condition.

Understanding MPS I:
MPS1 is a rare and debilitating genetic disorder that falls under the umbrella of mucopolysaccharidoses (MPS). Caused by a deficiency of the alpha-L-iduronidase enzyme, MPS1 leads to the accumulation of complex sugars in the body, resulting in a range of symptoms and complications. The Kennedy Ladd Foundation stands as a beacon of hope for those navigating the challenges of MPS1, providing support, resources, and advocacy.

The Kennedy Ladd Foundation’s Mission:
Founded in honor of Kennedy Ladd, a brave soul battling MPS1, the Kennedy Ladd Foundation is dedicated to supporting families affected by this rare disease. The foundation strives to raise awareness, fund research initiatives, and offer a network of support to enhance the quality of life for individuals living with MPS I. 

Our Mission: to advocate and raise awareness for MPS1. To support research and fund treatments for MPS1 patients. To encourage MPS1 families to get involved and tell their stories. 

Raising Awareness on Rare Disease Day:
Rare Disease Day offers a unique opportunity for the Kennedy Ladd Foundation to amplify its mission and draw attention to MPS1. Through social media campaigns, community events, and educational initiatives, the foundation encourages individuals and organizations to join forces in spreading awareness about the challenges faced by those with MPS1 and the need for continued research and support. 

The Impact of MPS I on Families:
Living with MPS1 can be an arduous journey for families. The Kennedy Ladd Foundation recognizes the emotional, physical, and financial toll that comes with managing this rare genetic disorder. Through their various programs, the foundation aims to provide a lifeline for families, offering resources, guidance, and a sense of community to navigate the complexities of MPS1.

A Call to Action:
As we observe Rare Disease Day on February 29th, the Kennedy Ladd Foundation invites everyone to become advocates for MPS1 awareness. By sharing information, participating in events, and supporting the foundation’s initiatives, we can contribute to a future where MPS1 is better understood, more effectively treated, and, ultimately, cured.

—Rare Disease Day serves as a powerful reminder that unity and awareness can make a difference in the lives of those facing uncommon challenges. The Kennedy Ladd Foundation stands at the forefront of the battle against MPS1, bringing hope and support to families in need. Let us join hands on this extra day in our calendar to champion the cause of MPS1 awareness and work towards a brighter, healthier future for those affected by rare diseases.

Donate, volunteer, partner, spread the word, or share your story. Together, we can make a difference!