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Fighting to Cure MPS1

The Kennedy Ladd Foundation, Inc. provides education, support and hope to families living with MPS1.

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A Rare, Progressive, Devastating Disease Affecting the Whole Body

MPS1 Hurler Syndrome is a severe, progressive genetic disorder that impacts nearly every part of the body. This rare disease affects the bones, organs, tissues, and nervous system, causing irreversible damage and pain. Children born with MPS1 face a lifetime of challenges, as the disease relentlessly deteriorates their quality of life. From stunted growth to severe heart and lung complications, MPS1 Hurler spares no system.

The diagnosis brings unimaginable tragedy and grief as parents are forced to confront the harsh reality that their child’s body is breaking down, one piece at a time. But there is hope through continued research, treatment options, and advocacy efforts.

MPS1 Hurler Syndrome not only steals the future but brings suffering in the present. We invite you to learn more about this devastating disease and how you can join the fight to find better treatments, and ultimately, a cure.

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"We are grateful for all the support we have received, and we are grateful to have our kids home with us. We know that we have been blessed and made it a part of our mission to raise awareness to make a difference for others. To that end, we are actively speaking to share our story, educate people about MPS and Orphan Diseases, ways that they can help, and to raise funding for a cure."
Allie Ladd
Executive Director
Mother to Kennedy and Lincoln

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With Your Help, There Will Be a Cure For MPS 1

Curing a disease is challenging, especially when it is unfamiliar to most people. However, it is not an impossible feat. There is hope that significant progress is being made, with more research being conducted than ever before. Additionally, there is a growing awareness of the disease, and credit goes to people like you for this positive change.

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The incidence of MPS1 is estimated to be around 1 in 500,000 live births.

Families Served
1
IPads Awarded
1
Raised
$ 1 +

Help us Bring 50 Families to the 2026 Cure Mps1 Family Summit.

Our goal is $50,000.

The Cure MPS1 Family Summit is the only annual gathering where children with MPS1 — and the families who love them — meet others who truly understand their world.

For many families, it’s the first time their child meets another kid like them.

The first time parents don’t have to explain everything.

The first time they don’t feel alone.

Your gift today helps us welcome 50 families to the 2026 Summit.