KL In the News | FierceBiotech.com – Rare disease advocates stage ‘funeral’ at FDA, demand 4 actions of agency and Congress Read More »
(VIDEO) KL In the News: Rare Disease Families Hold Mock Funeral Outside FDA Urging Faster Access to Treatments Read More »
Join us for an enchanting Spring Minis Photography Session with the incredibly talented Sarah Elizabeth Photo! Read More »
Uniting Hearts: February 29th Rare Disease Day and the Kennedy Ladd Foundation’s Fight Against MPS I Read More »
2024 Rare Disease Week on Capital Hill – Rare Disease Week on Capitol Hill Empowers and Inspires Hundreds Read More »
Newborn screening – join the fight to protect and advance one of America’s most successful public health programs Read More »
