The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1. Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”
There is a belief that all people are just six connections away from each other. We believe in harnessing that power to find the right people and resources to cure MPS1. Our movement is built on the idea that small groups can make monumental changes—and we are that group. Through grassroots efforts, advocacy, and collaboration, we will create the next wave of action that brings us closer to a cure for these children.
The Kennedy Ladd Foundation’s mission is to bring HOPE (Helping One Person Everyday) to families affected by MPS1 by advocating, educating, improving the quality of life, and finding a cure.
Supporting innovative treatments and clinical trials
Enhancing everyday life for families affected by MPS1
Push mandatory newborn screening in every state
We need you to help us move mountains. Whether through donations, sharing a story, or connecting us with others, every action counts in our fight to cure MPS1. You have the power to make a difference.
