MPS1 Hurler Syndrome is a severe, progressive genetic disorder that impacts nearly every part of the body. This rare disease affects the bones, organs, tissues, and nervous system, causing irreversible damage and pain. Children born with MPS1 face a lifetime of challenges, as the disease relentlessly deteriorates their quality of life. From stunted growth to severe heart and lung complications, MPS1 Hurler spares no system.
The diagnosis brings unimaginable tragedy and grief as parents are forced to confront the harsh reality that their child’s body is breaking down, one piece at a time. But there is hope through continued research, treatment options, and advocacy efforts.
MPS1 Hurler Syndrome not only steals the future but brings suffering in the present. We invite you to learn more about this devastating disease and how you can join the fight to find better treatments, and ultimately, a cure.
Curing a disease is challenging, especially when it is unfamiliar to most people. However, it is not an impossible feat. There is hope that significant progress is being made, with more research being conducted than ever before. Additionally, there is a growing awareness of the disease, and credit goes to people like you for this positive change.
The incidence of MPS1 is estimated to be around 1 in 500,000 live births.
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