Lincoln’s Story
Emerging treatments, a number of emerging treatments in development
There are no cures for MPS and ML, and there are only a handful of approved treatments. However, there are a number of emerging treatments and therapies currently in development at the following companies:
Blayne’s Story
Charlie’s Story
Join us for an enchanting Spring Minis Photography Session with the incredibly talented Sarah Elizabeth Photo!
Join us for an enchanting Spring Minis Photography Session with the incredibly talented Sarah Elizabeth Photo! Not only will you capture the season’s beauty, but you’ll also support a wonderful cause! Sarah is graciously donating a portion of the proceeds to The Kennedy Ladd Foundation. Plus, enjoy the cozy ambiance with a complimentary coffee cart on the patio […]
Uniting Hearts: February 29th Rare Disease Day and the Kennedy Ladd Foundation’s Fight Against MPS I
On this rare leap year day, as the world comes together to raise awareness about rare diseases, the Kennedy Ladd Foundation takes center stage in the fight against MPS1. February 29th, Rare Disease Day, serves as a poignant reminder of the unique challenges faced by individuals and families affected by this rare genetic disorder. Join […]
2024 Rare Disease Week on Capital Hill – Rare Disease Week on Capitol Hill Empowers and Inspires Hundreds
Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. The connections you make during the week will impact rare disease patients for generations to come. Hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), this multi-day event brings together rare disease advocates from […]
Newborn screening – join the fight to protect and advance one of America’s most successful public health programs
Man told he would die by age 10 now thriving at 34
California medical geneticist on treating ultra-rare disorders
